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Showing posts from December, 2024

We are out of time...

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Well...yeah, Sunday came...and went. The ME, however, was on duty as always, and circumstances of the past few days resulted in a five-day PENE response. I was barely functional for a bit. However, I’m used to it. I’ve been dealing with it, to varying intensities, for over 50 years. It’s just getting worse in terms of the fatigue and just getting things done. Moreover, I’ve become aware of two other persons with ME who went “end of watch” this past year, their symptoms reflecting extreme fatigue-related neural decline. Bottom line, I’ve been advised by more than one medical professional (and ones whom I trust, actually) that, given the condition, I probably don’t have a lot of years left. One even said it was time to “kick back and just enjoy life!” and let it all go. Yeah, right. I thought they knew me better than that (LOL). I’ve decided that (1) it’s better to die fighting for a just cause than from COVID, and (2) the one thing I can still do (according to...

Feeling betrayed? There's maybe a club you can join...

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  This is just a quickie (hmm...never did quite “get” that...LOL) so that (1) the handful of folks who actually read this stuff will know that I’m still around, but also continually battling the ME; and (2) I can practice a bit keyboarding, uploading to the blog, then spinning off the post to FB, X, BluSky, and Substack. I have not followed Instagram in the past. I don’t plan to now, really...but I also know that some of the folks whom I care about do use it. They’ll just have to read the blog (or whatever…). That’s it for now. I’m working on the first of the planned essays that I will post (Universe willing) on Sunday coming. I’m taking a rather singular focus with this series, as events and prognoses for the future require it. I attended a VA-sponsored focus group the past ten weeks or so, which centered on a succession of GLBT-related issues relating to mental health, quality of life, and the military. I met a young person in that group whose words, and heart, sparked...no, ...